My Gastric Bypass Complication Story Part 2
21:18
Whilst I was unconscious - From my husband's eyes
By the time Alex
called me to let me know she was going in for an emergency operation,
I had been awake for over 24 hours and didn't know what to think.
Part of me wanted to believe that the operation would be done quickly
and simply and that there would be no need to be worried. The rest of
me heard the obvious terror in Alex's voice when she told me she
loved me before the end of the call. I wanted more than anything to
be able to get to the hospital to be with her, but I respected her
request for me to stay put at home and see her after everything was
done.
It wasn't until I
got to the hospital and tried to find out where Alex would be taken
after the operation that I had my first inkling that something more
serious might have happened. At first I decided to go to the NEU
ward, as this is where she had been taken after her gastric bypass in
June, however I was told that she was not scheduled to have a bed
there. I then walked down to the ward she had been on when I had last
seen her that morning, where I was told that following the operation
she would be taken into the ICU. Desperate for more news, I headed
down to the ICU and spoke to a doctor who told me that although he
couldn't give me any information about how the surgery was going, he
would take my details and give me call once Alex was out. What
followed was the longest three hours of my life, where me and Alex's
family sat around a table in Costa glancing nervously at the time,
steadily growing more and more frightened. As we watched the
afternoon give way to evening, we periodically kept phoning the ICU,
desperate to get some news, but each time we were just told that she
was still in surgery. By the time it got to 6pm, we all decided to
get another coffee and we were waiting in line when I suddenly got a
call.
I had expected to
hear from the doctor I had given my number to in ICU, but instead was
told it was Mr Miller, which meant he must have called almost as soon
as he left theatre. I thought he was just calling to let us know that
Alex's surgery had been a success, however he gravely asked whether
it was possible to speak to me in person, which immediately made us
all terrified. Without hesitation we abandoned our place in the line
and hurried down the long corridor to the ICU and were swiftly buzzed
onto the ward. Although we were quickly met by a doctor, who ushered
us hastily back into the relatives rooms, we caught a fleeting
glimpse of Alex, with a maze of tubes and wires springing from her.
Alex's mum was instantly distraught, fearing the worst, but I was
determined to be optimistic and told everyone that it was probably
just to make sure she was given plenty of time to heal. Even though I
tried to reassure everyone that everything was going to be fine,
there was one thing that had me scared – Alex was on a ventilator.
After we were shown
to the room, we were left alone for almost twenty minutes, during
which everyone fixated on Alex lying in amongst the myriad tubes and
machines. Her mum kept jumping to the darkest conclusions, assuming
she was terribly ill and at death's door; that her greatest fear was
going to be realised and she would lose her eldest daughter months
after her son. Although I didn't want to show it, I was just as
worried – not really that she was going to die, as I had convinced
myself that there couldn't possibly be anything seriously wrong with
Alex – but that there was something I should have noticed earlier
in the evening, that might have meant she had gotten seen to sooner.
Into all this
anguish and worry came Mr Miller and my hope that he would simply
tell us that the operation had taken a bit longer, but otherwise had
been successful. Such hopes were quickly dispelled by the grim look
on his face. The first thing that he told us was that contrary to
what we had first thought, it had not been a gall stone. She had something called acute mesenteric ischemia; her gut had become trapped and had become starved of
oxygen and died. He went onto explain that it wasn't only a small
section of intestine, but almost all of it, which he had no choice
but to remove. Far from being out of the woods, Alex was, at present,
lying with her abdomen open with her bowel in three, disconnected
parts. She would need to have a second operation to have them all
connected together once he was sure that the remaining bowel would
remain healthy and he hoped he would be able to do this the following
day.
I normally find it
irritating when people misuse the word stunned, but that is precisely
how I felt at that moment. I don't think I was capable of fully
processing what Mr Miller had said apart from the fact that he would
be essentially reversing the gastric bypass. Its funny, the thing I
was most worried about at that moment was having to tell Alex that
after all her hard work, her bypass had been reversed. After that, it
dawned on me that the operation had been open, which was something
that Alex had been adamantly against. This was yet another thing she
would have to be told, but I don't think it had really sunk in just
how seriously ill Alex was.
Both of her parents
seemed to grasp the situation much better than me, which in a way was
much, much worse, as they realised just how bad things were. I don't
think I even took it in when Mr Miller said that someone who was
twice Alex's age might not have survived the illness, let alone the
subsequent surgeries.
I asked a number of
questions that, in hindsight, might have seemed idiotic to an
outsider; As Alex had lost most of her bowel, would she be given a
transplant? No. The intestinal tract was one of the most
immuno-active parts of the body, so it would be very risky. As
her bypass had been reversed, would she be she be back to square one,
likely to start gaining weight quickly? Again, no. He was more
concerned about the possibility that she would be unable to absorb
nutrients sufficiently, which would cause rapid weight loss.
Indeed, would she ever be able to become pregnant now that this had
happened? He didn't see any reason why Alex wouldn't be able to
carry a child, but it was far too early to comment.
When he eventually
left us no-one knew what to think. Her mum and sister were both
distraught, although I am sure that for all of the brave face that
her dad had, he was feeling just as terrified. I think I was still in
a state of unreality, unable to process what we had been told. It
could have been shock or exhaustion – perhaps a combination of both
– but I just remember me trying to console Alex's sister by telling
her that whatever had happened to her, it hadn't been that serious,
so there was no reason to worry.
After what seemed
like an age, we were finally called through and told that we could
briefly go and see Alex, although she was unconscious and heavily
sedated. It was at this point that it became real for everyone. It is
all well and good being told that something had happened to the
person you love most, but it is easy to convince yourself that there
was some kind mix-up and it wasn't MY Alex. I cannot begin to
describe the utter devastation of seeing the person you have shared
that last six years with lying on a bed with what seemed like a dozen
different tubes coming out of them. There was a plethora of different
tubes about her; drips containing saline, pain relief and sedatives;
a catheter; the ventilator going into her open mouth; two or three
drains from her open wounds and another from her nose. I think if it
was just that, it might have been bearable, but seeing the ventilator
tube protruding from Alex's open mouth was horrible – to know that
without that great hulking machine, she wouldn't be able to breathe.
We did the only thing we could think of, knowing that in all
likelihood she didn't know we were even there, stroking her hair,
holding her hand and telling her that we were here and loved her.
We didn't have long
with her before we were told that we should go home and rest, as she
was in the best possible place and that we would be contacted if they
needed us. In these circumstances you almost hope that they never
have to contact you, especially with someone in such a critical
state. After saying fraught goodbyes, Alex's family and I left in
silence. What could we talk about except for her? But how could we
bring ourselves to discuss it, as it only made everything seem so
much more real. I'm not sure if I remember the journey home, just
being dropped off outside the door and being asked if there was
anything I wanted or needed. I knew they were all suffering, as I
was, and they needed time to deal with the enormity of the situation,
so I said I was fine and they should get off home. There was only one
person I needed around me right then, but she was miles away in a
hospital bed, completely unaware of anything that had happened, so I
opted for solitude.
I knew that I had
to tell everyone in my family what had happened to Alex, so I called
my sisters, parents and aunt and managed to keep myself composed,
although it seemed like a superhuman effort. My family rallied around
me, asking if there was anything I needed – my sister and aunt
actually got together and baked me a load of pies, pasties and cakes
so I would have quick food.
The last call I
made was to my work to let them know the situation and to tell them I
wouldn't be in the following day, for obvious reasons. I agreed to
start working half days when I came back to work, as that gave me an
opportunity to visit Alex in the afternoon.
After the phone
call it was just me again, alone in a home that was meant to have
Alex in by my side. I tried to watch some television, but found it
impossible to concentrate on anything. I then tried to play a game,
something that should have helped take my mind off the fact that she
wasn't here. It didn't. Finally, I decided to try and surrender
myself to sleep in the hope that things would have changed for the
better the next day. It was then that I broke down under the strain
of everything that had happened and I sobbed and cried, partly
because Alex wasn't lying next to me, but mostly because I had no
idea when, or indeed if, she would be again. It finally hit me; Alex
was seriously ill in hospital and still had another operation to go
before we would know if she was OK
When I woke up the
next day I knew that nothing bad had happened over night as there had
been no missed calls from the hospital, or indeed from Alex's
parents, but I still wanted to check with the ICU, just to make sure
and was told that she had been stable all night and there had been
nothing worrying to report. I had go over to the hospital with Alex's
parents to see her before the second operation, which was scheduled
for early afternoon. As we all gathered around her, Alex appeared to
respond to us, but quickly started to attempt to pull out the
ventilator and various drips. We were told by the nurse that the
sedative had been briefly withdrawn to see how she was responding,
but it was still upsetting seeing someone so clearly distressed.
As there were so
many of us there – Alex's grandparents had rushed down, so there
were seven people in total – we had to take it in turns to be with
her. It shames me to say it, but part of me resented the time that
the rest of her family spent with her, as I wanted desperately to
spend every second I could with her. Before we knew it, we were being
told that Alex was being prepared for surgery and we should wait to
hear back. Thus started another excruciatingly long session in Costa,
constantly glancing at our phones in hope that a little more time
would have somehow slipped by. I don't remember precisely how long it
was, but I just remember the relief when we were told she had come
out of surgery.
Back down in the
relatives rooms, Mr Miller said that he had successfully reattached
the three parts of Alex's digestive tract and he thought that there
was just enough bowel left for Alex to live a fairly normal life. We
were told that we would be able to go in and see Alex in a while –
we were told they were busy inserting a central line – but she
would still be kept unconscious until the following day to give her
body more time to adjust and start healing. When we finally got
called through, she looked much the same as before, with an extra
tube or two sticking out of her, but it still felt wrong. Alex wasn't
supposed to be just lying there, not talking or moving; it just felt
wrong and upsetting.
For some reason
best known to my brain, I tried to cope with the situation by
examining the surrounding machinery in detail, asking the staff
anything that I wasn't sure about. Quite why a relative of a
seriously ill patient would choose to find out what each of the
monitors were measuring, or indeed why they would find it interesting
that the ventilator has a saline drip attached to it in order to
hydrate the air, is beyond me. Although we were all still worried
about what would happen to Alex, when we left the ICU that night, we
at least knew that Alex had survived both operations and seemed to be
responding well.
That evening I
actually managed to watch a film and put in a few hours on some game
or another, but I still wound up in bed crying myself to sleep
because Alex was not with me and I was still terrified that something
would happen to her.
Before I knew it,
it was morning again and time for me to go into work. Some people,
Alex included, can't understand why I chose to go into work when she
was still in intensive care, but it was just my way of coping. I knew
that in work I would just listen to some music and get into a zone
where hours could pass without be being fully aware. Of course,
before I started work, I had to call the hospital and make sure that
Alex had been OK over night – she had.
Just as I was
finishing work I received a call from the hospital saying that Alex
was awake and off the ventilator. I pretty much ran almost two miles
across York to get to her.

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